Taking up the struggle to improve care: a journey with diabetes

During a meeting halfway through a 24-month project for the UK National Institute for Health and Clinical Excellence (NICE), surrounded by well-known health professionals, Barbara Elster was asked her opinion on one of the subjects under discussion. Having expressed her views, she contemplated how she, a person with no formal medical training, had come to be in such esteemed medical company, involved in producing national guidelines on diabetes for the UK Government. In this article, she describes her journey with diabetes – as the mother of a child with the condition and a person with type 2 diabetes – and underlines the importance of a central role in diabetes care for people with the condition and recognition on the part of healthcare professionals of the importance of people’s real-life experience.
children, psychological issues, Diabetes UK